Patient-Reported Outcomes in Pediatric Surgery Registry
We invite ASEAN centers to collaborate in the registry, helping transform lifelong surgical care through the voices of our patients and families.
Phases of the PROPS Study:
Phase 1: Systematic reviews to identify existing Patient-Reported Outcomes and Experience Measures (PROMs/PREMs)
Phase 2: Selection of key PRO domains and appropriate instruments
Phase 3: Registry development and longitudinal data collection
About the Registry
This multi-sourced, multi-site prospective data registry captures long-term patient-reported outcomes (PROs) and experiences (PREs), and associated measures in children, youth, and their parents following major neonatal surgical interventions.
Participation Requirements
To join as a collaborating center, we will have to add you to our local REB and then you will need to:
1) Obtain local ethics approval from your institution’s Research Ethics Board (REB).
2) Complete institutional study authorization (if required).
3) Sign a Data Transfer Agreement (DTA) with the Research Institute of the McGill University Health Centre (RI-MUHC).
4) Assign a local study lead.
Interested? Contact Us
Suganthi Rajasegaran – Postdoctoral Fellow, Beardmore-CommiSur Lab
suganthi.rajasegaran@mail.mcgill.ca
Dr. Dan Poenaru – Director, Beardmore-CommiSur Lab
dan.poenaru@mcgill.ca